Cholangiocarcinoma Foundation

Congratulations to Cristina Ferrone, MD, one of our esteemed Science and Medical Advisory Board emeritus members, who has been appointed as the new chair of surgery at Cedars-Sinai. She is the first female chair of surgery at Cedars-Sinai! Her focus on pancreas, liver, and bile duct cancer, both clinically and in her research lab, elevates the profile of cholangiocarcinoma research. We are thrilled for the Cedars-Sinai community, which will benefit from her leadership and expertise. You can read more here: https://lnkd.in/eubNFnfp #cedarssinai #surgery #bileductcancer #cholangiocarcinoma #femaleleadership #womenleaders #womeninmedicine #CureCCA #CCAHope

Caregiver Honey Hireme-Smiler MNZM shares her experience facing her wife Rochelle's cholangiocarcinoma diagnosis in New Zealand's Woman's Day Magazine. Honey is known for her incredible professional rugby career and is a member of our CCF community as a caregiver and advocate. Honey and Rochelle have approached their journey focusing on making memories with their family and enjoying their time together. We are grateful they are sharing their story so others feel less alone. Read it here: https://lnkd.in/gxKpSS_8 #cholangiocarcinoma #StrengthinCommunity #Shareyourstory #caregiving

📆 Save the Date: April 9-11, 2025 🌆 Salt Lake City, Utah 🌟 12th Annual Cholangiocarcinoma Foundation Conference 🌎 International Consensus on Research Priorities The upcoming Annual Conference is a unique opportunity for patients and caregivers to sit side-by-side with experts in the field and provide their voices in helping focus research priorities. It is an effort between CCF’s International Cholangiocarcinoma Research Network (ICRN) and the European Cooperation in Science and Technology (COST)-Action: BTC Precision Network, part of the European Network for the Study of Cholangiocarcinoma. 🤝 The initiative brings together patients, caregivers, advocates, oncologists, researchers, industry, young investigators, regulators, and other specialists worldwide to review scientific evidence, share insights, and reach a consensus, or full agreement, on the research focus going forward to optimize existing funding and attract new funding. 🔬 Developing research priorities is crucial, and it is vital that we have the voices of patients, caregivers, advocates, and the scientific community. We hope to see you all there! 📝 Sign up for updates here: https://lnkd.in/g2rZwqKU #CCFAC25 #SLC #CureCCA #oncologyresearch #rarecancer #younginvestigators #patientadvocacy #caregiversupport #CCAHope

💚 Share Your Journey, Make a Difference! 🌳 Join CholangioConnect as a mentor and make a meaningful difference in someone's life. Your experience and guidance can provide the strength and hope others need during their journey with #cholangiocarcinoma. “I love my mentee and she is like family now. I doubted myself as a mentor and didn’t volunteer with CholangioConnect immediately, but I'm so glad I did.” – Katie Glenn Share your story and offer your wisdom to help us build a supportive community. Together, we can empower and inspire those who need it most. 🙋♀️ Ready to make a difference? Visit curecca.link/cc to learn more and become a mentor today! #CCAhope #cureCCA #CCAmentor #BileDuctCancer #CancerSupport

We invite you to the 2024 Chicago Cholangiocarcinoma Symposium, which will be held on Friday, September 27, from 9 a.m. to 3 p.m. at the David Rubenstein Forum, Hyde Park Campus. Thanks to the University of Chicago, AstraZeneca, and Servier Pharmaceuticals for their sponsorship of this free event. This event is an opportunity to connect with others affected by cholangiocarcinoma, meet leading experts in the field, and engage in meaningful discussions. Medical providers who attend can learn more about advances in treatments and resources and get face-to-face time with leading experts who can answer their questions. Why Attend? 🗣 Network with providers, experts, and individuals and families who share similar experiences 📚 Learn from leading experts about the latest advancements in cholangiocarcinoma treatment. 🤝 Engage in interactive Q&A sessions and panel discussions ⚕ Gain insights into both systemic and non-systemic therapies Register here: https://lnkd.in/e_najBtQ #cholangiocarcinoma #servier #astrazeneca #patientadvocacy #CureCCA #StrengthinCommunity #HopeInResearch #chicago #rarecancer

🌟 Introducing Our New Video Series: Cholangiocarcinoma 101 🌟 We know that a cholangiocarcinoma diagnosis can feel overwhelming and isolating. But you are not alone. 💚 Our new patient-friendly video series is here to help patients and their loved ones navigate a diagnosis, connect with resources, and explore treatment options. 🎥 The short videos are available here, and we invite you to watch them and share them with those you know affected by the disease and with providers who may work with patients affected by the disease: https://lnkd.in/ekacRRXv Thank you to the CCF Nursing Advisory Board for providing the guidance and scripting to ensure these educational videos are helpful to the community. #Cholangiocarcinoma #CancerAwareness #YouAreNotAlone #CCAHope #PatientSupport #CancerTreatment #StrengthInCommunity

Heather and her family share their story of hope and resilience around their journey with their mother’s cholangiocarcinoma diagnosis, culminating in the BOLDERBoulder 10K (BB10K). The race became an avenue to share with others their mom’s cancer diagnosis and provided a way for others to help. Read more about their inspiring steps to action: https://lnkd.in/eCJZqJhH For more information on Team CCF and how you can use your favorite fitness activity to raise hope, awareness, and critical research funds, visit https://lnkd.in/gsfsCkyv #teamccf #CCAHope #StrengthinCommunity #fitnessforacure #rarecancer

Chief Patient Officer Melinda Bachini co-authored "Amplifying the Patient's Voice in Oncology Early-Phase Clinical Trials: Solutions to Burdens and Barriers," which was recently published by ASCO. Thank you to all the patients who participated in the spring survey that informed this publication—your insights drive meaningful change. When patients and caregivers participate in research, they make a meaningful difference by providing critical perspectives that can help shape the future of treatment options. Their participation ultimately expands clinical trials, which is essential for improving treatments and finding cures. Together, we are making strides towards better care and outcomes for all. Read more at: https://lnkd.in/ggBr7VtQ #CCAhope #cureCCA #cholangiocarcinoma #CCAresearch #bileductcancer

CCF Science and Medical Advisory Board member emeritus Dr. Nabeel Bardeesy and a team of experts have a cholangiocarcinoma-related study published in Science Magazine. This publication only accepts work that reveals novel concepts of broad importance to the scientific community. It is a big accomplishment, and we are proud of the team for working to accelerate advancements. CCF provided some of the funding for the study through initiatives such as C2T2 and Research Fellowships and is proud to invest in studies that are changing the course of the disease. Read more about the study and CCF's involvement here: https://lnkd.in/e7r6UEab #scientificcollaboration #basicscience #HopeInResearch #researchfellowships #curecca #ccahope #cancerresearch #science

🤝 CholangioConnect mentors: do you have a mentee who would make a great mentor? Now is a good time to connect them with our team! As the program grows, we are always looking to recruit new mentors to join the CholangioConnect team! The one-on-one connections established through the program are making a difference for so many, and we want to continue providing those opportunities. Please encourage any interested mentees to contact the Cholangiocarcinoma Foundation team, and we'll help get them started. 💚 curecca.org #patientmentors #caregivermentors #connections #CCAHope #StrengthInCommunity