St. Baldrick's Foundation
Conquer Kids' Cancer
Programs and results
What we aim to solve
Worldwide, every 2 minutes a child is diagnosed with cancer. In the U.S., more children are lost to cancer than any other disease--in fact more than many other childhood diseases combined. One in five children diagnosed will die and those that do survive often suffer long term effects from treatment too harsh for their developing bodies. Yet only a fraction of the U.S. federal budget is solely dedicated to childhood cancer research. And while 60% of funding for adult cancer drugs comes from pharmaceutical companies, almost no funding goes to childhood cancer drugs because they are not as profitable. Kids with cancer need our help.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
GRANTS
From ideas in a lab to clinical trials, our grants make every stage of the research process possible. Each receives a rigorous scientific peer review, ensuring only the projects with the greatest potential to improve the quality of life and survival of children with cancer are funded.
St. Baldrick’s funds cooperative research on a national scale to help hospitals work together to develop the best treatments for all children, and translational research, clinical trials, infrastructure, data sharing and the training for a new generation of pediatric oncologists, across every disease and discipline. Each year, we award these grants based on scientific merit: Research; St. Baldrick’s Fellows, Summer Fellows, Scholars and International Scholars, and Supportive Care to ensure every child with cancer will one day be saved.
ADVOCACY - SPEAK UP FOR KIDS' CANCER
Speak Up for Kids’ Cancer is the advocacy action network of the St. Baldrick’s Foundation. It gives a voice to the vast network of families, volunteers and donors involved in the work of the Foundation. We provide information and resources to help people become advocates for children with cancer and survivors.
The network was developed because Congress’ actions can impact kids with cancer and survivors by critical legislation. One bill could affect programs available to survivors. Another bill could approve a federal study to examine any barriers to developing new pediatric oncology drugs. Appropriations by Congress set the level of research funding available each year to the National Cancer Institute, and in turn, childhood cancer research.
Speak Up for Kids' Cancer provides information about childhood cancer issues, alerts when advocacy help is needed most, and provides tips on communicating with elected officials.
FAMILY RELATIONS
St. Baldrick’s Honored Kids and their families bring hope and inspiration to our volunteers and supporters. When a family registers their child as an Honored Kid, they join a special community to champion the cause together. They can share stories of struggles and triumphs on a personal webpage, be advocates to raise awareness and the need for funding and allow participants to sign up to fundraise in honor of their child.
Every year, we select five Ambassadors from our Honored Kids to represent the thousands of kids touched by childhood cancer. The Ambassadors are chosen from many different geographic areas, age groups, disease types and more. These brave kids serve as a reminder that childhood cancer doesn't discriminate and that one in five kids diagnosed in the U.S. will not survive.
Children who are fighting or have fought cancer are the motivation behind St. Baldrick’s. They inspire fundraising participants to be part of our mission–to fund lifesaving research to find cures and give survivors long and healthy lives. The connection between St. Baldrick’s Foundation participants and our Honored Kids moves volunteers to raise more money and awareness, while also comforting families and their children with the knowledge that others are supporting them in the fight.
Where we work
Awards
BBB Charity Seal 2011
Better Business Bureau
Photos
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of organizations applying for grants
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Non-adult children
Related Program
GRANTS
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Total dollar amount of grants awarded
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Non-adult children
Related Program
GRANTS
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Total number of grants awarded
This metric is no longer tracked.Totals By Year
Related Program
GRANTS
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of new advocates recruited
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children, People with diseases and illnesses
Related Program
ADVOCACY - SPEAK UP FOR KIDS' CANCER
Type of Metric
Context - describing the issue we work on
Direction of Success
Increasing
Number of votes for or against specific policies
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children, People with diseases and illnesses
Related Program
ADVOCACY - SPEAK UP FOR KIDS' CANCER
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Holding steady
Context Notes
These stats pertain to Congressional votes.
Number of meetings or briefings held with policymakers or candidates
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Non-adult children
Related Program
ADVOCACY - SPEAK UP FOR KIDS' CANCER
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Number of media articles reflecting preferred issue framing
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children, People with diseases and illnesses
Related Program
ADVOCACY - SPEAK UP FOR KIDS' CANCER
Type of Metric
Output - describing our activities and reach
Direction of Success
Holding steady
Number of invitations for advocates to speak as experts
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children
Related Program
ADVOCACY - SPEAK UP FOR KIDS' CANCER
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of press articles published
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children, People with diseases and illnesses
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of groups brought together in a coalition/alliance/partnership
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children, People with diseases and illnesses
Related Program
GRANTS
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Number of donations made by board members
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children, People with diseases and illnesses
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Average number of dollars received per donor
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children, People with diseases and illnesses
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of public events held to further mission
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Non-adult children
Related Program
GRANTS
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
This number includes all events held to advance our mission.
Number of new donors
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children, People with diseases and illnesses
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Total dollars received in contributions
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children, People with diseases and illnesses
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Number of volunteers
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Non-adult children
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
Numbers reflect total volunteers involved in all roles within the organization.
Estimated number of funding dollars secured for the sector
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children
Related Program
ADVOCACY - SPEAK UP FOR KIDS' CANCER
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Holding steady
Context Notes
We successfully led the effort to pass the Childhood Cancer STAR Act and the Childhood Cancer Data Initiative, and the annual effort to secure full funding of both with totals $80 million.
Number of overall donors
This metric is no longer tracked.Totals By Year
Population(s) Served
People with diseases and illnesses, Non-adult children
Type of Metric
Input - describing resources we use
Direction of Success
Increasing
Context Notes
More donors are giving larger amounts since the pandemic.
Number of high-profile speakers or participants participating
This metric is no longer tracked.Totals By Year
Population(s) Served
Non-adult children, People with diseases and illnesses
Related Program
ADVOCACY - SPEAK UP FOR KIDS' CANCER
Type of Metric
Outcome - describing the effects on people or issues
Direction of Success
Increasing
Context Notes
Our statistic does not refer to "famous" people per se. It reflects the number of childhood cancer advocates (parents, patients, survivors, siblings and other relatives) we have activated.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The St. Baldrick's Foundation is a volunteer and donor powered charity committed to supporting the most promising research to find cures for childhood cancers and give survivors long and healthy lives.
What are the organization's key strategies for making this happen?
St. Baldrick's head shaving events began as a challenge between three businessmen and grew from one event in 2000 to currently over 13,000 worldwide raising critical funds for childhood cancer research. Events take place in pubs, restaurants, schools, parks, malls, military bases, firehouses and any other place you can imagine.
But the shaving itself is a means to an end. We shave because kids with cancer often lose their hair during treatment and we stand proudly bald beside them. More importantly, we can accomplish our goal to cure childhood cancer because while shaving, we raise funds for lifesaving research.
“Shavees" sign up on our website, collect money from friends and family and show up at a volunteer-organized event in their community to take their turn in the barber's chair. The events are fun, emotional and bring together a community of support for kids with cancer and their families.
Other strategies we employ include: Do What You Want – For those who choose not to shave but raise money with creative fundraisers; Hero Funds – Honor a loved one with a fund where money raised will be credited and from which grants can be named; Advocacy – Give a voice to St. Baldrick's constituents to advocate for childhood cancer research legislation; Distinguished Giving – Engage donors, partners and supporters to give at a higher level.
With these funds, we make grants in ten different categories. More than 200 pediatric oncology experts participate in the scientific review of research applications, to ensure the funds are going to the best possible research to find cures faster.
What are the organization's capabilities for doing this?
Since its inception in 2000, over 580,000 shavees shaved their heads at more than 14,000 St. Baldrick's signature head-shaving events worldwide. This army of volunteers generates 100% of our revenues, enabling the Foundation to emerge as the largest non-government funder of childhood cancer research grants.
St. Baldrick's has committed more than $306 million to lifesaving research since 2005. In three grant cycles every year, we fund local institutions as well as cooperative research on a national scale to help doctors work together to develop the best treatments for all children with cancer. Every grant application goes through a rigorous scientific review process. Thanks to this grant review system that impresses even the experts, we fund only the very best childhood cancer research wherever it takes place and give kids nationwide access to the very latest in research and clinical trials.
What have they accomplished so far and what's next?
To date, we have awarded 1,608 grants for childhood cancer research, supporting virtually every institution in the U.S. that has the expertise to treat childhood cancers – along with institutions in Canada and 29 other countries.
We supported the revolutionary development of Kymriah, the first gene therapy approved in the U.S. for a type of childhood leukemia, and as a result, children are alive today who had no other hope. Our research also enabled ground-breaking progress like the FDA approval of a drug that increases the survival rate of high-risk neuroblastoma, and the use of existing drugs to increase survival of other childhood cancers. Our grants also support the steady improvements in treatments that add up, over time, to more lives saved and to less toxic treatments.
We are partnering with other funders to see that pediatric cancer research moves forward as quickly as possible. Our multi-million dollar St. Baldrick’s - Stand Up To Cancer (SU2C) Pediatric Cancer “Dream Team" is using genomics to find targets and create new immunotherapies for childhood cancers. The Dream Team has opened more than 30 clinical trials already, working to expand its extraordinary success in leukemias and to find cures for solid tumors as well. In 2019 we announced a partnership with the American Cancer Society to fund research that helps maximize what is learned from childhood cancer clinical trials. Instead of simply learning that a new treatment works better for a certain percentage of patients, this partnership will fund grants to help researchers learn why – a big step toward making progress for those the trial did not help.
We receive hundreds of grant applications from researchers across the U.S. Each year, our scientific review process results in the approval of approximately $10 million more in grants than we are able to fund. We welcome foundations and donors big and small to partner with us to see that the best research moves forward as quickly as possible, so that every infant, child, teen and young adult will someday survive cancer.
We will continue to use each donor dollar wisely to achieve our mission. Charity rating agencies recommend that fundraising costs per dollar raised be kept under 35%, and special events often cost as much as 50%. Our costs in the fiscal year just ended were a healthy 23% for fundraising and 4% for administration. Our funding model is to reserve and bank funds for multi-year grants at the moment we award them. On our financial books, this appears as a liability which charity rating agencies view as incurred unpaid debt. In reality, we have the money in the bank and are waiting for signed grant agreements before release. This way, St. Baldrick’s honors its commitment to the researchers we fund, no matter what changes in the economy or in our fundraising.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals, We use feedback from researchers and families to improve our research funding programs.
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded
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What challenges does the organization face when collecting feedback?
We don't have any major challenges to collecting feedback
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
St. Baldrick's Foundation
Board of directorsas of 01/09/2024
Mr. Franklin Nutter
Reinsurance Association of America
Term: 2022 - 2024
Tim Kenny
Retired
Kathleen Ruddy
St. Baldrick's Foundation
John Bender
Allied World Reinsurance
Susan L Cohn, MD
University of Chicago
Frank Nutter
Reinsurance Association of America
Thomas Selquist
JP Morgan Private Bank
Phil Ralston
American Nevada Company
Jason Yustein, MD, PhD
Children's Healthcare of Atlanta & Emory University
Smita Bhatia, MD, MPh
Institute for Cancer Outcomes and Survivorship at University of Alabama at Birmingham
Jill Cetina
Moody's
John K. Smith
Pennsylvania Lumbermen's Mutual Insurance Company
John M. McManus
MGM Resorts International
Robert Martin
Bridge to a Cure Foundation
Ryan Brown
Goldman Sachs & Co. LLC
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
Equity strategies
Last updated: 02/20/2023GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more
- We review compensation data across the organization (and by staff levels) to identify disparities by race.
- We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
- We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
- We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
- We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
- We have community representation at the board level, either on the board itself or through a community advisory board.
- We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
- We measure and then disaggregate job satisfaction and retention data by race, function, level, and/or team.
- We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.